Wednesday 27 July 2011

We've had a set back...26-07-2011

....Over the past week or so, Maisie has started to change. When she is walking with her push along walker her left leg seems to have turned out and her leg is further apart from the right leg than what it was the other week. Maisie has since started jumping followed by screaming while trying to fit her splint on a night time & is now also rubbing her back again like what she did before her open reduction in March...

...So, this morning we rang the surgeon's secretary and explained some of our concerns about Maisie. The secretary put me on hold & rang down to the surgeon, who told her to tell us to come to clinic and she will check Maisie over....

....When we got to the hospital we were seen really quickly, the surgeon listened as I explained the concerns we had with Maisie. The surgeon then watched Maisie walk holding my hands and was impressed. She then asked for Maisie's trousers to come off so she could examine her hip. She pulled, bent and stretched Maisie's left leg and said that for the length of time it has been since the operation and cast removal her hip is feeling good, however she was concerned about the things we had reported and asked us to take Maisie for an x-ray in two positions, 1 with the legs as straight as possible and the other with her legs abducted (knee's bent and open legs). Once the x-rays had been done we went back to the surgeons waiting area to be called back in. When we went in, she was busy checking Maisie's x-ray's. She said that Maisie's hip has not dislocated again and the socket has deepened even more, with an Acetabular Index of 27 now =) however, she could not interpret the x-ray and see what was going on, she also told us that she was really concerned that Maisie has taken so many good steps forward, to have gone back was a worry....
 
....I found this x-ray image from google. I wanted it so I can try and explain a bit better what Maisie's new problem might be...You can see where the ball at the top of the femur bone sits nicely in the socket on the left side of the hip x-ray, you can also see that it follows in line with the pubic bone, joining onto the other side of the hip (which yes is slightly out of socket, but irrelevant). As Maisie has left hip dysplasia its her right side that is running in line with her pubic bone, her left however although still in socket does not follow suit and run in line with the pubic bone. Our surgeon is wondering if the ball is sitting too far back in the socket and if her pubic bone is broken....

....Maisie's surgeon has a meeting tomorrow (27-07-2011) with the radiologists at The Royal London, and she is going to discuss with them if it would be better to do an M.R.I scan or inject her with the dye and do an examination, she needs to discuss which would give them all a better picture of what is going on with Maisie's hip. Either way Maisie will need to be put to sleep to have done as she needs to stay still. Which should only be a day stay at The Royal London. But, the anethasists waiting lists are massive, but she is wanting and will try to get Maisie seen ASAP. We have been told to carry on as normal with Maisie & to allow her to carry on as normal....

Steph xxxx